Blog Archives

PAR-QoL Blog

Jan 04, 2012 at 4:57 PM

Welcome to our blog!

Welcome to the Par-QoL site's first blog entry! 

We hope this blog will serve as an informative source on exciting developments in the field of spinal cord injury (SCI).  This may include commenting on research articles, conferences and other important meetings, or on stories that have hit the mainstream media.

If you have something that you would like to share related to advancements in our field (upcoming conference, research findings, etc.), please send us an email.  We want to hear from you.

Thank you for your interest and hope that you will visit often and explore our site!

Sincerely yours,

The Par-QoL team

   

 

 

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Jan 10, 2012 at 3:09 PM

RNL Index Validated for SCI

The Reintegration to Normal Living (RNL) Index [1] has been validated for Spinal Cord Injury (SCI).

Members of our Par-QoL team have just published an article in the Archives of Physical Medicine and Rehabilitation validating the RNL Index for community-dwelling persons with traumatic SCI [2]. 

The RNL is a subjective measure of community participation, which has been validated for multiple impairment groups, such as stroke [3]. 

The RNL is used by the Canadian Institute for Health Information (CIHI), which is an independent not-forprofit organization that provides essential data and analysis of Canada’s health system and the health of Canadians. It is a part of their National Rehabilitation Reporting System (NRS) follow-up data set.

We feel that the RNL is a promising tool for both clinicians and researchers.

References:

  1. Wood-Dauphinée SL, Opzoomer MA, Williams JI, Marchand B, Spitzer WO. Assessment of global function: the Reintegration to Normal Living Index. Arch Phys Med Rehabil 1988;69:583-90

  2. Hitzig SL, Romero Escobar EM, Noreau L, Craven BC. Validation of the Reintegration to Normal Living Index for community-dwelling persons with chronic spinal cord injury. Arch Phys Med Rehabil 2012; 93: 108-14

  3. Daneski K, Coshall C, Tilling K, Wolfe CDA. Reliability and validity of a postal version of the Reintegration to Normal Living Index, modified for use with stroke patients. Clin Rehabil 2003;17:835-9.

 

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Jan 19, 2012 at 3:34 PM

Spotlight on Canadian Researcher

 

Came across this interesting media report on a Canadian Researcher working in the field of spinal cord injury.

This excerpt and video taken from the Brock University Website:

Spinal cord injuries alter lives; maximizing independence through the little things can make a big difference. 

David Ditor, associate professor of Kinesiology, and his lab was featured in a CHCH TV segment “Spinal rehab lab helps Brock researchers.”

His research focuses on the incremental improvements to physical conditioning for people with spinal cord injuries to reduce the prescence of secondary ailments. 

Through his research in spinal cord injuries he has developed numerous ties to Rick Hansen, which earned him a spot as a medal bearer on the St. Catharines stretch of the Rick Hansen 25th Anniversary Relay. 

His dedication to spinal cord research has also gained recognition, and will see him featured by CTV as one of 25 difference makers in spinal cord research. 

 

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Jan 24, 2012 at 10:48 AM

Interesting Paper on Secondary Health Conditions

Recommended Read!

An interesting advance online publication [1] has come out in the journal 'Spinal Cord' - which provides a definition and model for understanding factors that are related to secondary health conditions (SHC)s as individuals age with a disability and discusses the implications of the model for the assessment of SHCs.  It also discusses implications for developing interventions that minimize their frequency, severity and negative effects on the quality of life of individuals aging with SCI and other disabilities. 

As with quality of life, there is a need for some clarity on what constitutes a SHC after SCI, and this article provides some good suggestions for consensus.

  1. Jensen MP, Molton IR, Groah SL, Campbell ML, Charlifue S, Chiodo A, Forchheimer M, Krause JS, Tate D. Secondary health conditions in individuals aging with SCI: Terminology, concepts and analytic approaches. Spinal Cord 2011; 1-6.
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Jan 30, 2012 at 2:53 PM

Aging with SCI

As one ages with a spinal cord injury (SCI), there is some decline in physical functioning, which can partly arise from having to deal with secondary health conditions (SHC).

This video reports on some personal stories of aging with SCI, and illustrates how these individuals cope with SHCs in order to maintain good health and well-being.

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