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PAR-QoL Blog

Mar 05, 2012 at 2:33 PM

GTA Rehab Network - Best Practices Day, 2012

On Monday, February 28, our group presented a poster on the development of the PAR-QoL site at the GTA Rehab Network's Best Practices Day. This conference was hosted by the GTA Rehab Network, a conglomeration of both public- and community-based organizations involved in the provision and planning of rehabilitation services.

The theme for this year's conference was Building the Case for Rehab: Unlocking the Evidence. Many knowledgeable speakers took the stage and prompted the audience to think about what steps we, as healthcare professionals, should be taking right now to better our services for our consumers.  From the keynote panel discussion, a few important points were raised:

- Adequate access: Is the system providing enough rehab services based on what is needed?

- Evidence based care: Are rehabilitation interventions and treatments based on best evidence? Are they standardized?

- Timelines: Are rehabilitation services accessed in a timely way?

- What is the role of rehabilitation in substituting for acute care?

Overall, the conference was extremely informative, and we were glad to have the opportunity to present to raise awareness of our site. Click here to learn more about the wonderful speakers and view some of the presentations that were given!

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Mar 07, 2012 at 11:30 AM

The Importance of Wheelchair Skills Training - New Article!

Members of the Community Living and Quality of Life (COM-QoL) team, an inter-provincial research team of Quebec and Ontario researchers, have just published a new study on wheelchair skills. The study describes the manual wheelchair skill profiles of experienced users with spinal cord injury and their wheeled mobility (distance and speed) while considering their level of injury and age. Skill levels were evaluated using the wheelchair skills test (WST) and their mobility was measured in the participants’ own environment over a 7-day period, using a Cateye cycle computer.

The findings of this study illustrates that wheelchair skills training is associated with better mobility, which in turn can lead to improved community participation.

Lemay V, Routhier F, Noreau L, Phang SH, Ginis KA. Relationships between wheelchair skills, wheelchair mobility and level of injury in individuals with spinal cord injury. Spinal Cord. 2012;50:37–41.

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Mar 12, 2012 at 1:21 PM

March - Monthly Quality of Life (QoL) and Spinal Cord Injury (SCI) Articles

Here is this month's list of monthly articles relating to QoL and SCI:

1) Balcazar FE, Kelly, EH, Christopher BK; Balfanz-Vertiz K. Using peer mentoring to support the rehabilitation of individuals with violently acquired spinal cord injuries. J Appl Rehabil Counsel 2011;42:3-11.

2) Chlan KM, Zebracki K, Vogel LC. Spirituality and life satisfaction in adults with paediatric onset spinal cord injury. Spinal Cord 2011;49:371-5.

3) Dasch KB, Russell HF, Kelly EH, Gorzkowski JA, Mulcahey MJ, Betz RR, Vogel LC. Coping in caregivers of youth with spinal cord injury. J Clin Psychol Med Settings 2011;18:361-371.


4) Dolbow DR, Gorgey AS, Cifu DX, Moore JR, Gater DR. Feasibility of home-based functional electrical stimulation cycling: Case report. Spinal Cord 2012;50:170-1.

5) Froehlich-Grobe K, Aaronson LS, Wasburn RA, et al. An exercise trial for wheelchair users: Project workout on wheels. Contemp Clin Trials 2012;33:351-63.

6) Groah SL, Charlifue S, Tate D, et al. Spinal cord injury and aging: challenges and recommendations for future research. Am J Phys Med Rehabil 2012;91:80-93.

7) Kelly EH, Mulcahey MJ, et al. Psychosocial outcomes among youth with spinal cord injury and their primary caregivers. Top Spinal Cord Inj Rehabil 2012;18:67-72.

8) Kennedy P, Lude P, Elfström ML, Smithson E. Appraisals, coping and adjustment pre and post SCI rehabilitation: A 2-year follow-up study. Spinal Cord 2012;50:112-8.

9) Knight KH, Buchholz AC, Martin Ginis KA, Goy RE, SHAPE-SCI Research Group. Leisure-time physical activity and diet quality are not associated in people with chronic spinal cord injury. Spinal Cord 2011;49:381-5.

10) Krause JS, Terza JV, Erten M, Focht KL, Dismuke CE. Prediction of postinjury employment and percentage of time worked after spinal cord injury. Arch Phys Med Rehabil 2012;93:373-5.

11) Lemay V, Routhier F, Noreau L, Phang SH, Ginis KA. Relationships between wheelchair skills, wheelchair mobility and level of injury in individuals with spinal cord injury. Spinal Cord 2012;50:37-41.

12) Lin MR, Yu WY, Wang SC. Examination of assumptions in using time tradeoff and standard gamble utilities in individuals with spinal cord injury. Arch Phys Med Rehabil   2012;93:245-52.

13) Livneh HE, Martz E. The impact of perceptions of health control and coping modes on negative affect among individuals with spinal cord injuries. J Clin Psychol Med Settings;18:243-56.

14) Migliorini CE, New PW, Tonge BJ. Quality of life in adults with spinal cord injury living in the community. Spinal Cord 2010;49:365-70.

15) Ottomanelli L, Sippel JL, Cipher D, Goetz L. Factors associated with employment among veterans with spinal cord injury. J Vocat Rehabil 2011;34:141-50.

16) Saebu M, Sorensen M. Factors associated with physical activity among young adults with a disability. Scand J Med Sci Sports 2011;21:730-8.

17) Saunders LL, Krause JS. Behavioral factors related to fatigue among persons with spinal cord injury. Arch Phys Med Rehabil 2012;93:313-8.

18) Saunders LL, Krause JS, Focht KL. A longitudinal study of depression in survivors of spinal cord injury. Spinal Cord 2012;72-7.

19) Stroud MW, Bombardier CH, Dyer JR, Rimmele CT, Esselman PC. Preinjury alcohol and drug use among persons with spinal cord injury: implications for rehabilitation. J Spinal Cord Med 2011;34:461-72.

20) Vall J, Costa CM, Pereira LF, Friesen TT. Application of International Classification of Functioning, Disability and Health (ICF) in individuals with spinal cord injury. Arq Neuropsiquiatr 2011;69:513-8.

21) Weitzner E, Surca S, Wiese S, et al. Getting on with life: positive experiences of living with a spinal cord injury. Qual Health Res 2011;21:1455-68.

22) Wessels KK, Broglio SP, Sosnoff JJ. "Concussions in wheelchair basketball. Arch Phys Med Rehabil 2012;93:275-8.

23) Wijesuriya N, Tran Y, Middleton J, Craig A. Impact of fatigue on the health-related quality of life in persons with spinal cord injury. Arch Phys Med Rehabil 2012;93:319-24.

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Mar 19, 2012 at 3:26 PM

Quantitative or Qualitative? How to ask, that is the question!

A brief one-page summary has just been published in the Academic Medicine: Journal of the Association of American Medical Colleges, which provides a concise overview of the differences between quantitative and qualitative methodologies.

Question mark Question markQuestion mark

This one pager is a handy starting point to help you make decisions on how to frame your next research study or program evalutation activity.

Reference:

Castillo-Page L, Bodilly S, Bunton SA. AM Last Page: Understanding Qualitative and Quantitative Research Paradigms in Academic Medicine. Acad Med. 2012 Mar;87:386.

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Mar 26, 2012 at 4:33 PM

SCI in Nepal - Follow-up of outcomes following initial rehabilitation

A new article in Spinal Cord details the challenges of living with a spinal cord injury (SCI) in Nepal, which is a less resourced country in terms of infrastructure and medical facilities.  Not surprisingly, community participation was a challenge for most of those who were using mobility devices.

 

 

Scovil CY, Ranabhat MK, Craighead IB, Wee J. Follow-up study of spinal cord injured patients after discharge from inpatient rehabilitation in Nepal in 2007. Spinal Cord (2012) 50, 232–7;

 

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