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PAR-QoL Blog

Apr 02, 2012 at 3:14 PM

Aging and Quality of Life - New Systematic Review


People with spinal cord injury (SCI), who are now living an average of 30–40 years post injury, face a unique array of physical, functional and environmental stressors.  Given that more people with SCI are living longer, a greater understanding of the changes in QoL over time is important to ensure that people with SCI are not only living longer but also living well.

The Spinal Cord Injury Rehabilitation Evidence (SCIRE) group has just published a systematic review on the influence of aging on subjective QoL after SCI, with a specific objective to identify changes in QoL as one ages with a SCI.

This advance online publication is now available on the journal 'Spinal Cord'.

Reference:

Sakakibara BM, Hitzig SL, Miller WC, Eng JJ and the SCIRE Research Team. An evidence-based review on the influence of aging with a spinal cord injury on subjective quality of life. Spinal Cord advance online publication, March 27, 2012; doi:10.1038/sc.2012.19

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Apr 11, 2012 at 12:48 PM

April - Monthly Quality of (QoL) and Spinal Cord Injury (SCI) Articles

Here is this April's list of monthly articles relating to QoL and SCI

1) Augutis M, Anderson CJ. Coping strategies recalled by young adults who sustained a spinal cord injury during adolescence. Spinal Cord 2012;50:213-9.

2) Böthig R, Hirschfeld S, Thietje R. Quality of life and urological morbidity in tetraplegics with artificial ventilation managed with suprapubic or intermittent catheterisation. [Review]. Spinal Cord. 2012;50:247-51.

3) Cooper RA, Ferretti E, Oyster M, Kelleher A, Cooper, R. The relationship between wheelchair mobility patterns and community participation among individuals with spinal cord injury. Assistive Technology 2011;23:177-83.

4) de Groot S, Post MW, Bongers-Janssen HM, Bloemen-Vrencken JH, van der Woude LH. Is manual wheelchair satisfaction related to active lifestyle and participation in people with a spinal cord injury? Spinal Cord 2011;49:560-5.

5) Franceschini M, Pagliacci MC, Russo T, Felzani G, Aito S, Marini C; Italian Group for the Epidemiological Study of Spinal Cord Injuries. Occurrence and predictors of employment after traumatic spinal cord injury: The GISEM Study. Spinal Cord 2012;50:238-42.

6) Ginis KA, Hicks AL, Latimer AE, Warburton DE, Bourne C, Ditor DS, et al. The development of evidence-informed physical activity guidelines for adults with spinal cord injury. [Research Support, Non-U.S. Gov't Review]. Spinal Cord 2011;49:1088-96.

7) Othman AS, Engkasan, JP. Sexual dysfunction following spinal cord injury: The experiences of Malaysian women. Sex Disabil 2011;29:329-37.

8) Scovil CY, Ranabhat MK, Craighead IB, Wee J. Follow-up study of spinal cord injured patients after discharge from inpatient rehabilitation in Nepal in 2007. Spinal Cord 2012;50:   232-37.

9) Shem K, Medel R, Wright J, Kolakowsky-Hayner SA, Duong T. Return to work and school: a model mentoring program for youth and young adults with spinal cord injury. [Research Support, Non-U.S. Gov't]. Spinal Cord 2011;49:544-48.

10) Tasiemski T, Brewer BW. Athletic identity, sport participation, and psychological adjustment in people with spinal cord injury.  Adapt Phys Activ Q 2011;28:233-50.

11) van Leeuwen CM, Post MW, Westers P, van der Woude LH, de Groot S, Sluis T, et al. Relationships between activities, participation, personal factors, mental health, and life satisfaction in persons with spinal cord injury. [Comparative Study Research Support, Non-U.S. Gov't]. Arch Phys Med Rehabil 2012;93:82-9

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Apr 18, 2012 at 11:20 AM

PLANAT - Accessibility at Your Fingertips (The Rick Hansen Foundation)

The Rick Hansen Foundation is an organization that regularly contributes to improving accessibility for people with disabilities through research and other initiatives.  Furthering the foundation's vision of a more 'inclusive world' is Planat, an easy-to-use online tool that allows you to discover and find ratings for accessible restaurants, shops, accommodations, attractions (and more!). It focuses on accessibility features from a mobility, sight and hearing perspective. To get started, all you need to do is create a free account or log in through Facebook on your desktop or mobile phone!

Some amazing features of Planat are:
- Activate location services on your phone in order to look up venues nearby
- Look up accessibility information around the world
- Filter results according to location, venue type and rating

accessibility icon

 Click here to learn more about Planat and its features! To access Planat, visit Planat.com.

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Apr 25, 2012 at 12:36 PM

Knowledge Translation: Turning Research Into Application

The importance of knowledge translation (KT) in healthcare is profound. In much the same way as thinking is not the same as doing, knowing the best practices guidelines for chronic disease management, for example, is not the same as applying them.  This gap between the literature and practical application at a patient’s bedside refers to a need for specialized resources and a group of experts to come together in order to put knowledge into action.

Knowledge Translation Canada (KT Canada) is a ‘network of Canadian experts in knowledge translation’ that joined forces to do exactly that. Their goals involve improving the communication of research results, developing a consensus on KT terminology and methods, and ensuring that KT efforts have a lasting impact across the continuum of care by engaging health professionals, community members and various other targeted stakeholders.

Check out their website and become more educated on the tools and resources available to help you learn more about the KT process!

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