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PAR-QoL Blog

Jun 04, 2012 at 5:09 PM

New Animal Studies Providing Promising Findings for Curing Paralysis

A few recent animal studies have come out recently providing some promising results for curing paralysis after spinal cord injury. 

One study has looked at the ability of zebra fish to heal their spinal cords after injury - Read here for more details, and another study has found a promising electrochemical treatment for helping to heal the spine and has been demonstrated in a rat model - Read here for more details.

 

Although this is preliminary work and may not be applied in humans in the immediate future, it is exciting to see that important basic research such as this is being highlighted in the mainstream media.

 

 

 

 

 

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Jun 15, 2012 at 2:49 PM

Small Sample Size? There's a Method for That!

A challenge that many of us face working in the field of spinal cord injury (SCI) is getting a large sample size for our projects.  This can especially be challenging for persons working on program evaluation activities, where the size of the sample may be determined by the number of people that the program can sustain.  A special communication has just come out in the in Archives of Physical Medicine and Rehabilitation about research designs for studies with small N's.  Given that conducting randomized controlled trials are not always feasible in a rehabilitation setting, it is important to be aware of available alternative methods that can supplement findings from traditional research designs and improve our ability to evaluate the effectiveness of treatments for individual patients.

Reference: Graham JE, Karmarkar AM, Ottenbacher KJ. Small sample research designs for evidence-based rehabilitation:issues and methods. Arch Phys Med Rehabil 2012 (Advanced online publication)

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Jun 19, 2012 at 9:53 AM

Luc Noreau - SCI Community Survey

Dr. Luc Noreau is a Full Professor at the Rehabilitation Department, Laval University, and Scientific Director of the Centre for Interdisciplinary Research in Rehabilitation and Social Integration (CIRRIS), Quebec City.  Dr. Noreau helps to lead the Participation and Quality of Life (PAR-QoL) tool-kit but also is involved in numerous other projects examining factors that promote successful community participation for persons with spinal cord injury (SCI).  One of the studies is the SCI Community Survey, which is aiming to be one of the largest survey studies in Canada that aims to better understand whether the most critical needs deemed by people with SCI are being met by existing health and social service programs.

Luc Noreau

 

 

                              See Dr. Noreau talk about the survey here

 

 

 

 

 

 

Dr. Luc Noreau

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Jun 25, 2012 at 10:31 PM

Facing Disability - New Website

A new website has come online that uses the faces and voices of people with spinal cord injuries (SCI) to answer questions about their life’s adjustments to SCI in short video segments.  The site has stories on more than 100 people featured in on-camera interviews for FacingDisability.com, a multimedia-rich website launched in 2011 by nine-time Emmy Award-winning Chicago broadcast producer Thea Flaum. In addition to personal stories, the site has experts in the field of SCI answering a number of questions about living with SCI.

Flaum and her assistants created a list of 48 questions and then conducted on-camera interviews, not just with people who suffered SCI, but also their mothers, fathers, siblings, spouses, children and experts in the field. 

The creation of FacingDisability.com is rooted in a personal tragedy in Flaum's family — in 1986, her stepdaughter, Vicki Hill, fractured her spinal column after diving into a swimming pool in Naperville.

A full account on the creation of FacingDisability.com can be read here at the Spinal Cord Injury Zone.

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