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PAR-QoL Blog

Jul 08, 2012 at 10:52 PM

July - Monthly Quality of Life (QoL) and Spinal Cord Injury (SCI) Articles

1) Augutis, M., & Anderson, C. J. (2012). Coping strategies recalled by young adults who sustained a spinal cord injury during adolescence. Spinal Cord, 50(3), 213-219.

2) Barbonetti, A., Cavallo, F., Felzani, G., Francavilla, S., & Francavilla, F. (2012). Erectile dysfunction is the main determinant of psychological distress in men with spinal cord injury. Journal of Sexual Medicine, 9(3), 830-836.

3) Belciug, M. P. (2012). Patients' perceptions of the causes of their success and lack of success in achieving their potential in spinal cord rehabilitation. International Journal of Rehabilitation Research, 35(1), 48-53.

4) Bombardier, C. H., Fann, J. R., Tate, D. G., Richards, J. S., Wilson, C. S., Warren, A. M., Heinemann, A. W. (2012). An exploration of modifiable risk factors for depression after spinal cord injury: Which factors should we target? Archives of Physical Medicine and Rehabilitation, 93(5), 775-781. 

5) Bothig, R., Hirschfeld, S., & Thietje, R. (2012). Quality of life and urological morbidity in tetraplegics with artificial ventilation managed with suprapubic or intermittent catheterisation. Spinal Cord, 50(3), 247-251.

6) Fliess-Douer, O., Vanlandewijck, Y. C., & Van der Woude, L. H. V. (2012). Most essential wheeled mobility skills for daily life: an international survey among paralympic wheelchair athletes with spinal cord injury. [Research Support, Non-U.S. Gov't]. Archives of Physical Medicine & Rehabilitation, 93(4), 629-635.

7) Kaiser, A., Reid, D., & Boschen, K. (2012). Experiences of Parents with Spinal Cord Injury. Sexuality & Disability, 30(2), 123-137.

8) Kennedy, P., Lude, P., Elfstrom, M. L., & Smithson, E. (2012). Appraisals, coping and adjustment pre and post SCI rehabilitation: a 2-year follow-up study. Spinal Cord, 50(2), 112-118.

9) Kullmann, L., & Toth, K. (2012). Exploration of quality-of-life goals in individuals with spinal cord injury. International Journal of Rehabilitation Research, 35(1), 85-87.

10) Martin Ginis, K. A., Phang, S. H., Latimer, A. E., & Arbour-Nicitopoulos, K. P. (2012). Reliability and validity tests of the leisure time physical activity questionnaire for people with spinal cord injury. Archives of Physical Medicine & Rehabilitation, 93(4), 677-682.

11) Norrbrink, C., Lindberg, T., Wahman, K., & Bjerkefors, A. (2012). Effects of an exercise programme on musculoskeletal and neuropathic pain after spinal cord injury - Results from a seated double-poling ergometer study. Spinal Cord, 50(6), 457-461.

12) Parker, M., & Yau, M. (2012). Sexuality, Identity and Women with Spinal Cord Injury. Sexuality & Disability, 30(1), 15-27.

13) Pershouse, K. J., Barker, R. N., Kendall, M. B., Buettner, P. G., Kuipers, P., Schuurs, S. B., & Amsters, D. I. (2012). Investigating changes in quality of life and function along the lifespan for people with spinal cord injury. Archives of Physical Medicine and Rehabilitation, 93(3), 413-419.

14) Peter, C., Muller, R., Cieza, A., & Geyh, S. (2012). Psychological resources in spinal cord injury: a systematic literature review.  Spinal Cord, 50(3), 188-201

15) Peter, C., Rauch, A., Cieza, A., & Geyh, S. (2012). Stress, internal resources and functioning in a person with spinal cord disease. Neurorehabilitation, 30(2), 119-130.

16) Piatt, J., Compton, D. M., Sara Wells, M., & Bennett, J. L. (2012). Interventions that Effect Active Living among Individuals with Spinal Cord Injury. Therapeutic Recreation Journal, 46(1), 9-25.

17) Rohde, L. M., Bonder, B. R., & Triolo, R. J. (2012). Exploratory study of perceived quality of life with implanted standing neuroprostheses. Journal of Rehabilitation Research and Development, 49(2), 265-278.

18) Rutherford Owen, T., & Marini, I. (2012). Attendant Care and Spinal Cord Injury: Usage Patterns and Perspectives for Those with Life Care Plans. Journal of Life Care Planning, 10(4), 33-43.

19) Rutherford-Owen, T., & Marini, I. (2012). Life Care Plan Implementation among Adults with Spinal Cord Injuries. Journal of Life Care Planning, 10(4), 5-20.

20) Sale, P., Mazzarella, F., Pagliacci, M. C., Aito, S., Agosti, M., & Franceschini, M. (2012). Sport, free time and hobbies in people with spinal cord injury. Spinal Cord, 50(6), 452-456.

21) Tebbet, M., & Kennedy, P. (2012). The experience of childbirth for women with spinal cord injuries: An interpretative phenomenology analysis study. Disability and Rehabilitation: An International, Multidisciplinary Journal, 34(9), 762-769.

22) van Leeuwen, C. M. C., Kraaijeveld, S., Lindeman, E., & Post, M. W. M. (2012). Associations between psychological factors and quality of life ratings in persons with spinal cord injury: a systematic review. Spinal Cord, 50(3), 174-187.

23) Yorkston, K. M., Bamer, A., Johnson, K., & Amtmann, D. (2012). Satisfaction with participation in multiple sclerosis and spinal cord injury. Disability and Rehabilitation: An International, Multidisciplinary Journal, 34(9), 747-753.

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Jul 18, 2012 at 2:05 PM

PAR-QoL Update - New Features on the Way!

The PAR-QoL site has now been online for over 8 months! Having started in November 2011, we are rolling out some new content and features to help with your understanding on quality of life (QoL) measurement in the field of spinal cord injury (SCI).

Here are a few features to look forward to for Fall 2012!

- Depression: A section on depression will be added to our secondary health conditions page, which will link to our outcome tools section to provided information on what QoL and participation measures have been used to assess the impact of depression.

- Physical Activity:  We will slowly be expanding our content to include other life domains.  Our first section will be on examining what tools have been used to measure the impact of physical activity on QoL and community participation.  Like our other sections on secondary health conditions, we will highlight which QoL tools have been used in this domain.

- Newsletter: In addition to our current news and events feature, a regular newsletter will be made available to subscribers discussing key issues and new advances in the field of SCI.

- Ask an Expert: This feature will allow visitors of the website to ask any questions regarding SCI to experts of the field through the website.

We hope the site has been useful and we are always looking for thoughts and feedback.  Please feel free to comment on our blog or send us an email with any feedback.

Thank you for your continued interest and we hope that you will keep visiting frequently!

Sincerely yours,

The PAR-QoL Team

PAR-QoL

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