Quality of Life Concepts

Secondary Health Conditions

Inflammatory Bowel Disease Questionnaire (IBDQ)

Description: A quality of life (QoL) questionnaire for patients with inflammatory bowel diseases [1].

Format: 32 questions grouped into four dimensions: bowel, systemic, social, and emotional.

Scoring: Scores range from 1 (poorest QoL) to 7 (best QoL). Higher scores indicate better QoL.

Administration and Burden: Interviewer-administered; Self-administered version also available.

Psychometrics for SCI: Good internal consistency, with a Cronbach α of 0.85 for the bowel-related quality of life items.

Languages: English, and several other languages.

QoL Concept: This is a Health-Related QoL measure of Subjective Well-Being, which corresponds to Boxes C (achievements) and E  (subjective evaluations and reactions) of Dijker’s Model.

Permissions/Where to Obtain: Copyrighted; The IBDQ can be purchased at the Flintbox website at: www.flintbox.com/technology.asp?page=496.

References:

  1. Guyatt G, Mitchell A, Irvine EJ, Singer J, Williams N, Goodacre R, Tompkins C. A new measure of health status for clinical trials in inflammatory bowel disease. Gastroenterology. 1989;96:804-10.

CLICK ON THE LISTED SECONDARY HEALTH CONDITIONS ON THE LEFT TO READ HOW THE IBDQ HAS BEEN USED WITH A PARTICULAR CONDITION


Bowel Dysfunction SCI Studies: One case control study.

  1. Luther SL, Nelson AL, Harrow JJ, Chen F, Goetz LL. A comparison of patient outcomes and quality of life in persons with neurogenic bowel: Standard bowel care program vs colostomy. J Spinal Cord Med 2005; 28:387-93.

Sensitivity to Impact: Luther et al. (2005) compared quality of life (QoL) in people with neurogenic bowel using either a standard care program (N = 74) or colostomy (N = 296). No significant differences were detected on health-related QoL between persons who had had colostomy, and those who had not. Given that the IBDQ has not been used in other SCI bowel-related studies, however, the sensitivity of this measure to impact requires further validation.  

Suggestions for Use: Although the pilot by Luther et al. (2005) yielded good internal consistency reliability on the bowel-related QoL items, the IBDQ has not been used in other SCI bowel-related studies. Further validation of this measure is recommended for use in the SCI population.

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